Hemophilia and von Willebrand disease (VWD) are not well-known outside the bleeding disorders community. But thanks to the spotlight on these disorders from several media, film and television luminaries, that is changing.
NovoSeven has been demonstrated safe and effective when treating cranial hemorrhages in patients with inhibitors.
For parents of a child newly diagnosed with a bleeding disorder, medical costs and insurance coverage instantly become big concerns because of the high cost of clotting factor.
Nearly 2,400 people with bleeding disorders, their family members, healthcare providers and industry representatives gathered for the 2010 NHF Annual Meeting. Learn more and view a photo slideshow.
Betty Jane Henry died at her home in Wellington, Florida, on Sunday, September 5, at the age of 93.
Washington Days was held February 16–18, 2011.
“Steps for Living” provide in-depth educational and instructional materials for people with bleeding disorders, and their families, as they move from birth to adulthood.
Jeanne White-Ginder, Ryan White’s mom, leads the Indiana Hemophilia Walk.
Vaibhav Nehra and Paul Wilton are determined to succeed, but they face obstacles that their classmates do not: They have severe hemophilia A.
About 2 million kids and teenagers in the US who are 12 to 17 years old had at least one major depressive episode in the previous year.
“We want to be part of mainstream media,” says Val Bias, NHF CEO. “Anything that brings more visibility to the foundation and what we’re trying to do helps our agenda.”
Amr Elbeshir wanted something that would exercise his mind and his body. “Tai chi allowed me to visualize being healthy.”
When you have pets, taking care of them is also part of your life, just like taking care of your bleeding disorder.
New NHF Board member Jill R. Birdwhistell, PhD, wants to educate the healthcare world about women's bleeding disorders.
I have a motto: motion is lotion. When I’m not dancing, I have more bleeds than when I do dance.