Hemophilia and von Willebrand disease (VWD) are not well-known outside the bleeding disorders community. But thanks to the spotlight on these disorders from several media, film and television luminaries, that is changing.
For parents of a child newly diagnosed with a bleeding disorder, medical costs and insurance coverage instantly become big concerns because of the high cost of clotting factor.
Nearly 2,400 people with bleeding disorders, their family members, healthcare providers and industry representatives gathered for the 2010 NHF Annual Meeting. Learn more and view a photo slideshow.
“Steps for Living” provide in-depth educational and instructional materials for people with bleeding disorders, and their families, as they move from birth to adulthood.
“We want to be part of mainstream media,” says Val Bias, NHF CEO. “Anything that brings more visibility to the foundation and what we’re trying to do helps our agenda.”
