As technology has advanced and more patients have been genotyped worldwide, it has become clear that knowledge of genotype will play a key role in clinical care.
“Surprisingly, we found that kids with severe hemophilia could take a lot more in the way of impact sports than is often attributed to them.”
Lysteda is used to treat heavy menstrual bleeding common in women with von Willebrand disease (VWD), and Wilate is for bleeding in all types of VWD.
Some important provisions of the healthcare reform are now in effect, including elimination of pre-existing condition exclusions for children, and the ability for dependents to stay on their parents' plan up to age 26.
During the National Hemophilia Foundation's Washington Days, members of the bleeding disorders community talk healthcare reform and more with their congressional representatives and senators.
Now they will call me when they’re going to do something provider-related and say, “We want to know what the chapter thinks.”
The National Hemophilia Foundation hosts a workshop for the world’s hemophilia experts to share and discuss breakthroughs in research and technology.
A child and his mother travel for a week by bus in Peru to visit a treatment center. A young man from rural Armenia has a leg amputated—the result of a lack of available factor concentrates.
The Hemolog iPhone app is now available to log your factor infusions. Logs and phone apps can help with adherence.
Genotyping could become the catalyst for the National Hemophilia Foundation to fulfill its mission to find better treatments and cures for people with bleeding disorders.
Physical therapists count resistance bands and exercise balls among their favorites for patients with bleeding disorders.
As you become good friends with another boy or girl, you may decide you want to tell your new friend about your bleeding disorder. It’s your decision who you tell and how much you want to talk about.
A new NHF women's institute is developing a broad awareness campaign to reach undiagnosed women—in particular, those between the ages of 18 and 25.
Hemophilia researcher William H. Velander, PhD, preps actor Harrison Ford for role in the movie Extraordinary Measures.
The appearance of HIV/AIDS in the bleeding disorders community was the defining moment in the life of W. Keith Hoots, MD.