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Summer 2011

Up Front

Building Community Online

Learn how chapters can build a social media presence.

To Your Health

Long Strides

Biogen Idec is conducting trials on longer-lasting hemophilia factor products.
The Rx Factor

The Food and Drug Administration is taking steps to prevent harmful side effects from acetaminophen and propoxyphene in prescription pain medications.

Financial Health

Advocating for HTC Funding

Funding for the national network of hemophilia treatment centers could be on the chopping block.

NHF in Action

"The Unfamiliar Bleed" Letter to the Editor

A HemAware letter to the editor points out the near-impossibility of two brothers with hemophilia having different severity levels.
Enrich Your Learning on New NHF Web Site

Steps for Living: First Step (ages 0–8) provides families with newly diagnosed children a one-stop resource online.
Five Chapters Join NHF

The chapters will adopt the name, logo and brand of NHF, although they will retain their mission of providing services to their local constituents.
Get Inspired in Chicago at NHF’s 63rd Annual Meeting

How were you inspired at NHF's Annual Meeting in Chicago? Let us know on Twitter by using hashtag #NHF11.
HemAware Is Golden

HemAware magazine wins several industry awards for its Web site and magazine design.
Pediatric Hematologist Joins NHF as Medical Advisor

Dr. Marion Koerper will assist NHF in developing educational materials and working with the HTC network.

Global Focus

To Russia, With Love

When Yuri Zhulyov began his work with the bleeding disorders community in 1989, the number of people living with hemophilia in Russia was unknown.

Features

Battling Bullies

Although having a bleeding or clotting disorder can make a child a target, when it comes to bullying and mean girls, experts say anyone can be fair game.
Digital Connections

Individual blogs, discussion forums, Twitter, Facebook and YouTube are increasingly becoming the primary link connecting members of the bleeding disorders community.

On the Move

Back to Basics

Getting in shape doesn’t require expensive gear or the latest fad workout routine. All you really need is your own body.

Hemaware Jr.

Walk, Don’t Run!

Kids can participate in Hemophilia Walks, too. Here's how to get started.

Women's Health

In the Game

For many girls with bleeding disorders, physical education class, exercise and sports are complicated by menstrual cycles that are long, heavy and painful.

Take 5

Western Medicine

When Judith Baker began working in Region IX in 1990, the focus was on HIV in the HTC network. That has changed.