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Research & Treatment

Stay updated on the latest treatment, including surgeries and transplants, for hemophilia, von Willebrand disease, rare bleeding disorders, HIV and hepatitis C.

Hemophilia A&B
von Willebrand Disease
Rare Bleeding Disorders
HIV
Hepatitis C
Surgery & Transplants

Hemophilia A&B

Featured Articles

Single dad with his son and father playing chess

Verdict? Not Guilty

Sometimes the guilt that comes with a bleeding disorder can be overwhelming, but there are ways to get off that guilt-filled path.

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Not Alone

Single parents find support while raising children with bleeding disorders.

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Measuring Matters

New recommendations announced for dosage devices for liquid medicine; infant acetaminophen restricted to one strength.

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I Hurt Easy, I Just Don’t Show It

It has been brought to my attention—again—that I expend a lot of energy giving hemophilia a rather rosy, if not inflamed, glow. It seems I give the humorous incidents precedence and attempt to keep...
See the Man With the Stage Fright

It happened when I was 9 years old, which would make it the summer of 1955 or thereabout. Having been fed lunch, my brother and I were invited by our mother to spend the rest of the afternoon outside...
All I Want for Christmas Is My Two Front Teeth

Until I was about 10 or 11, it seems every hemorrhage I had was either my knee, usually the left, or something to do with my face. During one trip to the doctor, after I used my nose and mouth to...

50%

of women carriers for hemophilia A or B have factor VIII or IX levels below 50%, putting them in the mild hemophilia category.

von Willebrand Disease

Featured Articles

Woman upset on bed with man's back turned away from her

Sex Talk

Because sexual problems are not often discussed in public, women with bleeding disorders can feel isolated and unsure where to turn.

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Clean Cut

Nosebleed treatment NasalCEASE has been approved for minor wounds for those with bleeding disorders such as mild hemophilia or von Willebrand disease, type I.

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In the Game

For many girls with bleeding disorders, physical education class, exercise and sports are complicated by menstrual cycles that are long, heavy and painful.

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1-2%

of people in the US have von Willebrand disease, the most common bleeding disorder.

Rare Bleeding Disorders

Featured Articles

Child with factor VII deficiency plays with yarn

Hemophilia Pseudotumors 101

Pseudotumors are rare in countries with access to hemophilia treatment, but it’s important for those at risk to know about this potentially life-threatening complication.

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Factor XIII Deficiency One of Rarest Bleeding Disorders

The Food and Drug Administration approved Corifact, the first factor treatment for factor XIII deficiency, on February 17, 2011.

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Factor VII Deficiency

A hematologist put the pieces together and diagnosed Peltier with severe factor VII (FVII) deficiency, a rare bleeding disorder formerly known as proconvertin deficiency.

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1948

was the year the National Hemophilia Foundation was founded in New York City.

HIV

Featured Articles

HIV Under Control

Elite HIV controllers have nearly undetectable levels of the virus, and researchers are trying to figure out why.

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Bringing Up Baby

More than 50% of couples in which one partner is HIV-positive want to have children. What are their family planning options?

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More Doors Open for HIV Survivors

In 1987, when people found out Shawn Decker was HIV-positive, he was shunned. School administrators quietly ushered the 11-year-old out of sixth grade for fear he would bleed in school and endanger classmates.

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50%

of women carriers for hemophilia A or B have factor VIII or IX levels below 50%, putting them in the mild hemophilia category.

Hepatitis C

Featured Articles

Costs and Coverage of New Hepatitis C Drugs

Potential candidates for the new hepatitis C drugs will need to consider the drugs’ price, which will be added to the already steep cost of interferon and  ribavirin.

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Hepatitis C and Hemophilia

The FDA approved telaprevir, a new hepatitis C drug, after recently approving another new drug, boceprevir. Both are protease inhibitors.

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Hepatitis C Evaluation

Liver transplants can have good outcomes if patients know what to ask their hematologist, when to confer with a hepatologist and when to be listed in a national liver transplant database.

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2,500

people attend the NHF Annual Meeting each fall.

Surgery & Transplants

Featured Articles

Hurting Hips

Elvis swiveled them. Jeans hug them. People with hemophilia have pain in them. Hips. Without them, we couldn’t walk or stand. But when hips hurt, life can slow to a crawl.

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Ankle Surgery

For people with hemophilia, ankles are one of the target joints, prone to repeated bleeds.

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When Elbow Surgery Is the Best Option

Kent Greer, who has severe hemophilia A, started having elbow bleeds as a child. As he got older, his elbows became target joints for bleeds.

Link: » read more

» SEE ALL ARTICLES

1948

was the year the National Hemophilia Foundation was founded in New York City.

Research & Treatment

Stay updated on the latest treatment, including surgeries and transplants, for hemophilia, von Willebrand disease, rare bleeding disorders, HIV and hepatitis C.

Hemophilia A&B

Hemophilia A&B

Featured Articles

von Willebrand Disease

von Willebrand Disease

Featured Articles

Rare Bleeding Disorders

Rare Bleeding Disorders

Featured Articles

HIV

HIV

Featured Articles

Hepatitis C

Hepatitis C

Featured Articles

Surgery & Transplants

Surgery & Transplants

Featured Articles

Need info? Ask NHF!