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Spring 2011

Up Front

  • Grandpa with hemophilia with granddaughter

    Men with hemophilia today are experiencing the joys—and the aches and pains—of a life lived into middle age and beyond.

To Your Health

  • Brain fog

    For years, patients with hepatitis C have complained of loss of concentration, memory lapses and shortened attention span. Is there something to this?

  • Getting vitamin D on the beach

    For patients with hemophilia, learning about bone health now may help prevent osteoporosis and fractures later.

Financial Health

NHF in Action

  • Perseus Patel, winner of the NHF Kevin Child scholarship

    The 2010 winner of the Kevin Child scholarship is Perseus Patel, 21, who has severe hemophilia A.

  • Father with two sons with hemophilia and inhibitors

    The 2011 Inhibitor Education Summits will be held June 16–19 in Miami and July 14–17 in San Francisco.

  • Suitcase with Chicago sticker

    Grants are typically awarded to 13–20 families and individuals who have never attended an NHF Annual Meeting. The next Annual Meeting is in Chicago, November 10-12, 2011.

  • Twitter logo

    The Hemophilia Foundation of Illinois has embraced social media, with a Hemophilia Walk Twitter account, a general Twitter account and pages on Facebook, Flickr and YouTube.

  • Ian Muir

    More than 200 people met with their senators and representatives to hammer home two main issues for the bleeding disorders community this year.

Global Focus

  • Montreal

    The World Federation of Hemophilia is developing a program to facilitate international collaboration in research.

Features

  • Older man with hemophilia

    Growing older with hemophilia can feel less like the golden age and more like the rust years. As you age, it is important to advocate for yourself and access the resources at your HTC.

  • Toddler with a joint bleed

    Many families today benefit so much from hemophilia prophylaxis that joint bleeds may be infrequent. Will you know how to recognize and treat a joint bleed when it happens in your child?

On the Move

  • Young man playing disc golf

    Disc golf, modeled on traditional golf, combines walking and throwing a flying disc at a target.

Hemaware Jr.

  • Cartoon of a boy and girl coloring My HTC and Me.

    You can have fun coloring pictures of all the people you visit during your annual hemophilia treatment center checkup.

Women's Health

  • Danielle Schwager at the 2010 World Hemophilia Congress

    Susan Skinner Memorial Fund Scholarship winners Danielle Schwager and Mallory O’Connor attended the 2010 World Hemophilia Congress.

Take 5

  • Brad Allain teaching at World Ocean School

    Going into the job, Brad Allain had no sailing experience, but in a matter of weeks he was handling the sails like a pro.