Starting a home-care regimen for hemophilia and other bleeding disorders can be a life-changing experience for families. Here’s what you need to know about storing factor products properly.
The recommendations are intended to set standards of care for the treatment of hemophilia and von Willebrand disease, and to set guidelines for blood safety.
The National Hemophilia Foundation has counterparts across the country advocating for the needs of patients with blood disorders. These groups had never met until the first National Conference on Blood Disorders in Public Health.
Scientific literature can be intimidating, even to people with hemophilia and other bleeding disorders. Not so for three consumers selected to attend the National Hemophilia Foundation’s new therapies workshop.
People with all types of bleeding disorders, including von Willebrand disease and even the most severe types of hemophilia, should get some form of exercise.
The first time doctors told Sherri Revard that she couldn’t have a bleeding disorder because she was a girl, she was 5 years old and had just had her tonsils out.
The study is the first of its kind on a national level, and the results could go a long way toward a better understanding of the physiology of VWD after childbirth.
The blood clots, known as venous thromboembolism (VTE), can lead to pulmonary embolism, a condition that develops when an artery in the lung is blocked by a blood clot that traveled there from elsewhere in the body.
