Family Matters

Family support is critical to anyone living with an inheritable blood or bleeding disorder. Hear from families like yours in this section of HemAware.

A solid team can ease stress for parents.
How to ensure children get the support they need.
Be your own or your child’s best advocate
If you have hemophilia or another bleeding disorder in your family tree, meeting with a genetic counselor is key.
Depending on when your child is diagnosed with a bleeding disorder, your first conversations with him or her about the...
Solutions for the biggest challenges.
Confusion is normal, but your child will be OK
In easily understood language, Raising a Child with Hemophilia covers such topics as medical treatment, genetic transmission, child development, consumer...
Fathers who share a bleeding disorder with their daughters play an important role in their lives.
Following the ABCs can help parents and caregivers ease the pain and anxiety of infusions.
“When Jorge was diagnosed, our family was diagnosed,” Cristina says. “We were going to figure this out together.”
Common outpatient procedures like tonsillectomies and ear tube placements may require additional precautions or even an overnight hospital stay for...
Chat Icon
Need Info? Ask NHF!
Contact HANDI, NHF's resource center for additional information on bleeding disorders.