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Hemophilia A&B

Haight family
By Sarah Aldridge | 10.04.2010

People with severe hemophilia might envy their peers with mild hemophilia. But life for patients with mild hemophilia can be fraught with problems.

Boy with hemophilia near a pool
By Kristina R. Anderson | 09.28.2010

Wouldn’t it be great if you could stay strong, flexible and fit with a low-risk exercise program and have some fun at the same time? You can! Swimming is a great exercise for people with hemophilia and other bleeding disorders.

Session at a hemophilia Inhibitor Education Summit
By Beth Marshall | 09.02.2010

The NHF Inhibitor Education Summits provided an opportunity to learn more about having hemophilia with an inhibitor—and to connect with people familiar with those challenges.

hemophilia treatment
By Martha J. Frase | 08.10.2010

The definition of “curing” a chronic disease varies widely.

Whiteboard
By Sarah Aldridge | 07.26.2010

The National Hemophilia Foundation has counterparts across the country advocating for the needs of patients with blood disorders. These groups had never met until the first National Conference on Blood Disorders in Public Health.

Lung X-ray
By Sarah Aldridge | 07.14.2010

The liver and lungs have something in common—factor VIII (FVIII) is produced in both.

People and DNA
By Melanie Padgett Powers | 06.28.2010

Scientific literature can be intimidating, even to people with hemophilia and other bleeding disorders. Not so for three consumers selected to attend the National Hemophilia Foundation’s new therapies workshop.

Researcher studying hemophilia
By Katarina Grande | 06.28.2010

Learn about the latest bleeding disorders research and breakthroughs.

AFFIRM group
06.16.2010

AFFIRM is a three-year fellowship targeting men with hemophilia ages 25 to 35 from across the country.

clinical trial participants
By Chris Blose | 05.25.2010

Clinical trials—whether they’re testing a new drug or treatment, measuring the safety of an experimental therapy or fine-tuning dosages of an existing product—move science and medicine forward.

Boy with hemophilia and an inhibitor
05.24.2010

Fewer than 1,000 of the people with hemophilia have an inhibitor—The Inhibitor Patient Education Summits can provide answers to these families.

Genotyping
By Sarah Aldridge | 04.20.2010

Genotyping could become the catalyst for the National Hemophilia Foundation to fulfill its mission to find better treatments and cures for people with bleeding disorders.

genotyping for hemophilia
By Connie Miller, PhD, and J. Michael Soucie, PhD | 04.20.2010

As technology has advanced and more patients have been genotyped worldwide, it has become clear that knowledge of genotype will play a key role in clinical care.

Data about hemophilia
By Neil Versel | 03.15.2010

A lot has changed in the more than 30 years since hemophilia treatment centers (HTCs) were started as a way to better diagnose and treat people with bleeding disorders.

Clinical trials and hemophilia
By Heather Boerner | 03.05.2010

HemAware explains how a clinical trial works, how participants can benefit and how to find a hemophilia or von Willebrand disease trial near you.

02.18.2010

The National Hemophilia Foundation (NHF) is pleased to announce its research and fellowship award winners, who were honored at NHF’s 61st Annual Meeting in October 2009.

Genetics and hemophilia
By Sarah Aldridge | 01.14.2010

Researchers have known for years that certain factors, including genetics, increase the likelihood of inhibitor development.

Kogentate approved for hemophilia
By Patrick Hayes | 01.11.2010

It is now easier for physicians to prescribe and consumers to be reimbursed for a prophylactic treatment for hemophilia A.

Dog with hemophilia
By Sarah Aldridge | 01.06.2010

When the blood supply became contaminated with HIV, the dog plasma provided gold mine of information.

Kinesio taping
By Sarah Aldridge | 01.05.2010

"It helps with edema, or swelling, by draining the excess fluid and getting the blood out.”