www.facebook.com/NationalHemophiliaFoundation twitter.com/NHF_hemophilia /stories/feed

Hemophilia A&B

Ryan and Kay Krivas
By Melanie Padgett Powers | 03.07.2011

Some parents in the bleeding disorders community must deal with additional medical and emotional challenges, because their children have a second diagnosis: a developmental disability or a neurobehavioral disorder such as autism or ADHD.

Toddler with hemophilia learns to walk
By Gina Shaw | 02.07.2011

NovoSeven has been demonstrated safe and effective when treating cranial hemorrhages in patients with inhibitors.

Two teenagers watch the TV show Royal Pains.
By Sarah Aldridge | 02.07.2011

“We want to be part of mainstream media,” says Val Bias, NHF CEO. “Anything that brings more visibility to the foundation and what we’re trying to do helps our agenda.”

Teenage boy with hemophilia and depression
By Eric Metcalf | 02.07.2011

About 2 million kids and teenagers in the US who are 12 to 17 years old had at least one major depressive episode in the previous year.

Boy with hemophilia on playground
By Bruce Goldfarb | 02.06.2011

For more than 40 years, doctors who care for people with hemophilia have known that therapy with replacement clotting factor can reduce bleeding into joints.

Head bleed
By Sarah Aldridge | 02.05.2011

Head bleeds can occur in children and adults with bleeding disorders. The obvious ones are a result of trauma, such as a fall or injury to the head, but some occur spontaneously from no apparent cause.

Hemophilia and sports
By Sarah Aldridge | 02.03.2011

“Surprisingly, we found that kids with severe hemophilia could take a lot more in the way of impact sports than is often attributed to them.”

Doctor with mom and little girl at a hemophilia treatment center
By Rebecca A. Clay | 02.02.2011

HTCs are designed to attend to all of a patient’s needs, from the medical and psychological to practical matters such as schooling, insurance and jobs. Learn how they can help your family.

A hemophilia nosebleed
By Nick Kolakowski | 02.01.2011

People with hemophilia get nosebleeds, which can usually be treated at home.

Hemophilia plasma products
By Stephanie Watson | 01.31.2011

Twenty years ago, people would have probably predicted the demise of plasma-derived products, but they’ve maintained a place in treatment.

Refrigerator for storing hemophilia factor
By Martha Frase | 01.30.2011

Starting a home-care regimen for hemophilia and other bleeding disorders can be a life-changing experience for families. Here’s what you need to know about storing factor products properly.

Personal health recordkeeping
By Eric Metcalf | 01.29.2011

Bleeding disorders experts and organizations are developing products to help people coordinate and share their personal health history.

Hospital Emergency Room sign
By Rebecca A. Clay | 01.24.2011

Pseudotumors are rare in countries with access to hemophilia treatment, but it’s important for those at risk to know about this potentially life-threatening complication.

Young boy thinking
By Rebecca A. Clay | 12.29.2010

The Hemolog iPhone app is now available to log your factor infusions. Logs and phone apps can help with adherence.

Healthy People 2020
By Melanie Padgett Powers | 12.03.2010

Healthy People 2020, the nation’s new 10-year health roadmap, includes a “Blood Disorders and Blood Safety” section for the first time. Goals include increasing von Willebrand disease diagnosis and reducing hemophilia joint problems.

Blood donation
By Beth Marshall | 10.14.2010

The recommendations are intended to set standards of care for the treatment of hemophilia and von Willebrand disease, and to set guidelines for blood safety.

Doctors looking at chart
By Kim Olson | 10.14.2010

Many young adults with bleeding disorders are drawn to the healthcare field after undergoing treatment, surgeries and procedures throughout their life.

Haight family
By Sarah Aldridge | 10.04.2010

People with severe hemophilia might envy their peers with mild hemophilia. But life for patients with mild hemophilia can be fraught with problems.

Boy with hemophilia near a pool
By Kristina R. Anderson | 09.28.2010

Wouldn’t it be great if you could stay strong, flexible and fit with a low-risk exercise program and have some fun at the same time? You can! Swimming is a great exercise for people with hemophilia and other bleeding disorders.

Session at a hemophilia Inhibitor Education Summit
By Beth Marshall | 09.02.2010

The NHF Inhibitor Education Summits provided an opportunity to learn more about having hemophilia with an inhibitor—and to connect with people familiar with those challenges.