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Why Women and Girls with Bleeding Disorders Have Been Overlooked

Too often, heavy bleeding is dismissed as “normal.” Now, women with bleeding disorders and providers in the community are speaking up — and changing how care is understood.

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Why Women and Girls with Bleeding Disorders Have Been Overlooked
Beyond Bleed Counts: Redefining Success in Bleeding Disorders Care

Managing your condition is about more than controlling bleeds. It’s also about living the life you want.
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Beyond Bleed Counts: Redefining Success in Bleeding Disorders Care
From Racing to Recovery and Beyond: An Elite Cyclist’s Journey with Hemophilia

From elite cyclist to engineer, Zack Stein has never let hemophilia hinder his dreams. Neither has his father, Scott.
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From Racing to Recovery and Beyond: An Elite Cyclist’s Journey with Hemophilia

Recent Articles

How to Build Your Child’s Confidence When They Have a Bleeding Disorder

How to Build Your Child’s Confidence When They Have a Bleeding Disorder

Here’s what you should — and shouldn’t — say to kids to help them feel empowered about their bleeding disorder.

Family Matters

How Specialized Clinics for Women and Girls with Bleeding Disorders Improve Care

How Specialized Clinics for Women and Girls with Bleeding Disorders Improve Care

Women and girls clinics are closing gaps with coordinated bleeding disorders care that spans every stage of life.

Women's Bleeding Disorders, Advocacy

2026 Bleeding Disorders Conference Preview.jpg

2026 Bleeding Disorders Conference Preview

Here’s a sampling of the sessions you can look forward to at BDC.

NBDF in Action

How to Build Your Child’s Confidence When They Have a Bleeding Disorder

How to Build Your Child’s Confidence When They Have a Bleeding Disorder

Here’s what you should — and shouldn’t — say to kids to help them feel empowered about their bleeding disorder.

Family Matters

How Specialized Clinics for Women and Girls with Bleeding Disorders Improve Care

How Specialized Clinics for Women and Girls with Bleeding Disorders Improve Care

Women and girls clinics are closing gaps with coordinated bleeding disorders care that spans every stage of life.

Women's Bleeding Disorders, Advocacy

2026 Bleeding Disorders Conference Preview.jpg

2026 Bleeding Disorders Conference Preview

Here’s a sampling of the sessions you can look forward to at BDC.

NBDF in Action

Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

Congenital Fibrinogen Deficiency Symptoms, Types, and Treatment

We answer some of the most common questions about this rare bleeding disorder.

Rare Bleeding Disorders

Need Information about Bleeding Disorders?

Contact The Neil Frick Resource Center (NFRC)