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Watchdog

Find out about the latest state and federal advocacy efforts, insurance tips and blood safety news.

Insurance

Pulse on the Road audience

Hemophilia organizations, including NHF, hit the road to educate community about healthcare reform and health insurance issues.

A baby with hemophilia visiting the doctor with his mom

For parents of a child newly diagnosed with a bleeding disorder, medical costs and insurance coverage instantly become big concerns because of the high cost of clotting factor.

Woman reading bill

When your insurance coverage changes and you are forced to switch to a different homecare company, what should you do?

Blood Safety

Man looking through microscope

The journal Science has published two papers online that it says cast doubt on the link between XMRV and chronic fatigue syndrome (CFS) and has asked study authors to voluntarily retract their 2009 paper linking XMRV and CFS.

Blood donation bag

Federal committee votes 9–6 to uphold the ban, determining that the available data are inadequate to change the policy.

Advocacy

Funding for the national network of hemophilia treatment centers could be on the chopping block.

Ronnie Nelson

Hemophilia treatment centers have become victims of their own success.