A HemAware letter to the editor points out the near-impossibility of two brothers with hemophilia having different severity levels.
NHF encourages everyone who has a bleeding disorder to wear some form of medical ID. Some consumers are demanding more flair than the plain metal bracelet.
Many families today benefit so much from hemophilia prophylaxis that joint bleeds may be infrequent. Will you know how to recognize and treat a joint bleed when it happens in your child?
About 2 million kids and teenagers in the US who are 12 to 17 years old had at least one major depressive episode in the previous year.
The Hemolog iPhone app is now available to log your factor infusions. Logs and phone apps can help with adherence.
Many young adults with bleeding disorders are drawn to the healthcare field after undergoing treatment, surgeries and procedures throughout their life.
Paying for college can be especially hard for students with bleeding disorders, but there are ways to help these students finance their education.
Middle school children should be prepared to take on some of the responsibilities of their care.
Teens who have grown up at camp now work to give younger kids with bleeding disorders that same sense of belonging at locations around the country.
Freedom is appealing, but to get it, you have to handle your bleeding disorder.
What will bring me satisfaction over the course of my working life? What physical demands will my career place on me? How will I get my medications paid for?
Baby Boomers with hemophilia and their Generation X and Generation Y counterparts are discovering common bonds.
Individuals with expensive, chronic medical conditions, like hemophilia and other types of bleeding disorders, need reliable health insurance.
In the fast-paced world of the 21st century, connecting with others seems even more desirable, especially for those with bleeding disorders.
For many, the experience leads to service at the national level and to jobs in healthcare.
Among the more than 4,000 colleges and universities in the United States, there is a good fit for almost any student with a bleeding disorder.