NHF encourages everyone who has a bleeding disorder to wear some form of medical ID. Some consumers are demanding more flair than the plain metal bracelet.
HTCs are designed to attend to all of a patient’s needs, from the medical and psychological to practical matters such as schooling, insurance and jobs. Learn how they can help your family.
When you’re the primary caregiver for someone with a bleeding disorder, sometimes it seems like just one more thing will make you snap.
Learn how to tell your boyfriend about von Willebrand disease.
You can maximize your next office visit by taking steps to improve your health communication.
The need for linguistic and cultural competence is becoming more urgent as our society grows increasingly diverse.
Bleeding disorders experts and organizations are developing products to help people coordinate and share their personal health history.
The Hemolog iPhone app is now available to log your factor infusions. Logs and phone apps can help with adherence.
As you prepare to travel for the holidays, here are some tips on traveling with hemophilia factor.
Clinical trials—whether they’re testing a new drug or treatment, measuring the safety of an experimental therapy or fine-tuning dosages of an existing product—move science and medicine forward.
Fewer than 1,000 of the people with hemophilia have an inhibitor—The Inhibitor Patient Education Summits can provide answers to these families.
Through this new tool, one family member can create a master document that can be shared among other family members.
HemAware explains how a clinical trial works, how participants can benefit and how to find a hemophilia or von Willebrand disease trial near you.
Patient assistance programs provide a helping hand.
The Genetic Information Nondiscrimination Act (GINA) ensures that people with genetic markers for medical conditions, including bleeding disorders, can’t be denied health insurance or refused employment.
Vaccinations are not just for kids. Two in particular—hepatitis A and B—are strongly recommended for everyone in the bleeding disorders community.