www.facebook.com/NationalHemophiliaFoundation twitter.com/NHF_hemophilia /stories/feed

Taking Charge

Dad and son sitting on a bench
By Laura Putre | 10.24.2011

Sometimes the guilt that comes with a bleeding disorder can be overwhelming, but there are ways to get off that guilt-filled path.

Flood sign
By Melanie Padgett Powers | 09.15.2011

Americans have recently experienced wildfires, tornadoes, hurricanes, flash floods and earthquakes. If a disaster strikes your community, are you prepared?

Needle
By Melanie Padgett Powers | 09.15.2011

Children and adults with bleeding disorders can and should receive the recommended immunizations for their age group.

Boy grinning with missing tooth
By Elizabeth Thompson Beckley and Melanie Padgett Powers | 09.06.2011

Trouble finding a dentist? Here are some ways to find the right dental home.

By Laura Putre | 07.25.2011

Learn how you can prepare your children to manage their bleeding disorder, beginning even when they're a toddler.

Boy dressed up for battle
By Sarah Aldridge | 07.25.2011

Although having a bleeding or clotting disorder can make a child a target, when it comes to bullying and mean girls, experts say anyone can be fair game.

Emergency room sign
By Melanie Padgett Powers | 06.27.2011

An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child’s bleeding disorder when they must visit the emergency room.

Medical ID for hemophilia
By Kadesha Thomas | 05.23.2011

NHF encourages everyone who has a bleeding disorder to wear some form of medical ID. Some consumers are demanding more flair than the plain metal bracelet.

Doctor with mom and little girl at a hemophilia treatment center
By Rebecca A. Clay | 02.02.2011

HTCs are designed to attend to all of a patient’s needs, from the medical and psychological to practical matters such as schooling, insurance and jobs. Learn how they can help your family.

Person meditating
By Heather Boerner | 02.01.2011

When you’re the primary caregiver for someone with a bleeding disorder, sometimes it seems like just one more thing will make you snap.

Boyfriend and girlfriend
By Bruce Goldfarb | 01.31.2011

Learn how to tell your boyfriend about von Willebrand disease.

Hematologist
By Sarah Aldridge | 01.31.2011

You can maximize your next office visit by taking steps to improve your health communication.

Couple talking to doctor
By Rebecca A. Clay | 01.30.2011

The need for linguistic and cultural competence is becoming more urgent as our society grows increasingly diverse.

Personal health recordkeeping
By Eric Metcalf | 01.29.2011

Bleeding disorders experts and organizations are developing products to help people coordinate and share their personal health history.

Young boy thinking
By Rebecca A. Clay | 12.29.2010

The Hemolog iPhone app is now available to log your factor infusions. Logs and phone apps can help with adherence.

Suitcases
By Elizabeth Thompson Beckley | 06.24.2010

As you prepare to travel for the holidays, here are some tips on traveling with hemophilia factor.

clinical trial participants
By Chris Blose | 05.25.2010

Clinical trials—whether they’re testing a new drug or treatment, measuring the safety of an experimental therapy or fine-tuning dosages of an existing product—move science and medicine forward.

Boy with hemophilia and an inhibitor
05.24.2010

Fewer than 1,000 of the people with hemophilia have an inhibitor—The Inhibitor Patient Education Summits can provide answers to these families.

Man with laptop
By Sarah Aldridge | 03.29.2010

Through this new tool, one family member can create a master document that can be shared among other family members.

Clinical trials and hemophilia
By Heather Boerner | 03.05.2010

HemAware explains how a clinical trial works, how participants can benefit and how to find a hemophilia or von Willebrand disease trial near you.