When certified nursing assistant Julie Seminara injured herself while moving a nursing home patient back in 2001, her problems seemed serious but straightforward: She had three herniated discs in her neck and a torn shoulder.
An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child’s bleeding disorder when they must visit the emergency room.
NHF encourages everyone who has a bleeding disorder to wear some form of medical ID. Some consumers are demanding more flair than the plain metal bracelet.
People with factor V deficiency provide a challenge to their treaters. There is no factor concentrate they can infuse at home, and they can have an array of symptoms.
Both my stepdaughters were born with severe factor V deficiency, an orphan disease with no treatment except fresh frozen plasma after a bleed is recognized.
A hematologist put the pieces together and diagnosed Peltier with severe factor VII (FVII) deficiency, a rare bleeding disorder formerly known as proconvertin deficiency.
In January 2009, the US Food and Drug Administration (FDA) approved CSL Behring’s RiaSTAP™ for the treatment of acute bleeding episodes in people with congenital fibrinogen deficiency, a rare bleeding disorder also known as factor I deficiency.
The next day, Beck went through a battery of tests. He was told he had von Willebrand disease. It wasn’t until the following year that his real diagnosis was revealed.
HTCs are designed to attend to all of a patient’s needs, from the medical and psychological to practical matters such as schooling, insurance and jobs. Learn how they can help your family.
Pseudotumors are rare in countries with access to hemophilia treatment, but it’s important for those at risk to know about this potentially life-threatening complication.
The National Hemophilia Foundation has counterparts across the country advocating for the needs of patients with blood disorders. These groups had never met until the first National Conference on Blood Disorders in Public Health.
Clinical trials—whether they’re testing a new drug or treatment, measuring the safety of an experimental therapy or fine-tuning dosages of an existing product—move science and medicine forward.
