Family Matters

Family support is critical to anyone living with an inheritable blood or bleeding disorder. Hear from families like yours in this section of HemAware.

What to Do When a Sibling Has a Bleeding Disorder

When a child has a chronic health condition, it affects the whole family. Though it can cause uncertainty and stress...

Family Matters

Transitioning from Pediatric to Adult Care for Bleeding Disorders

For people with bleeding disorders, the transition from pediatric to adult health care is somewhat like the broader transition from...

Family Matters, Taking Charge

How to Manage Kids’ Screen Time

Leigh Myers’ son spent significant time in the hospital for a surgical procedure when he was barely 1. After he...

Family Matters

A drawing depicting a teenager smoking a vape device.

How Vaping Affects Teens with Bleeding Disorders

It’s a pervasive problem facing young people. More than 2 million U.S. students in grades six to 12 vape, with...

Family Matters

Mental Health Crisis for Teens

The last time Jennifer Feldman, R.N., saw Derick, * a then 20-year-old with severe hemophilia A, he asked for help...

Family Matters

Children and Anxiety

Anxiety diagnoses are on the rise. Here’s how to recognize symptoms in your child.

Family Matters

When Your Child with Hemophilia Has a Fear of Needles

Many young children are afraid of needles, and many parents may have anxiety about giving their child infusions, especially in...

Family Matters

Parents in the Bleeding Disorders Community Share Their Best Advice

HemAware asked parents for their best advice on what has helped them navigate their children’s bleeding disorders in the first...

Family Matters

Young Pioneers in the Bleeding Disorders Community

When Laura Elliott adopted Julian at 5 years old, she knew he had hemophilia, but when she brought him home...

Family Matters

Health and Wealth: Financial Planning for the Bleeding Disorders Community

When you’re juggling money to manage the day-to-day of paying bills and running a household, the prospect of projecting your...

Family Matters

Handling Opioids with Care

Pain is a fact of life for many people with bleeding disorders, who can experience bleeding into joints. Physical therapy...

Taking Charge, Family Matters

Ask a Social Worker: Back-to-School Questions for Kids and Adults

Ask a Social Worker is a new monthly column featuring questions from the community and answers from members of NHF’s...

Family Matters, Ask a Social Worker