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Parenting

Teenage boy with hemophilia and depression
By Eric Metcalf | 02.07.2011

About 2 million kids and teenagers in the US who are 12 to 17 years old had at least one major depressive episode in the previous year.

Person meditating
By Heather Boerner | 02.01.2011

When you’re the primary caregiver for someone with a bleeding disorder, sometimes it seems like just one more thing will make you snap.

Refrigerator for storing hemophilia factor
By Martha Frase | 01.30.2011

Starting a home-care regimen for hemophilia and other bleeding disorders can be a life-changing experience for families. Here’s what you need to know about storing factor products properly.

Brothers running
By Lisette Hilton | 11.15.2010

A tangled web of emotions weaves its way through sibling relationships when one child has a chronic health condition and the other does not.

Boy screaming
By Heather Boerner | 07.14.2010

Shai had been anxious about needles before. But as his parents prepared to transition him away from his port, he began to hide his arms at infusion time.

By Elizabeth Fung, MSW, PhD | 07.14.2010

A child’s fear of and protest against the infusion process often create a stressful situation for himself and his parents, who can feel powerless.

Little girl with the flu
By Heather Wicks | 04.13.2010

Getting sick is a natural part of childhood, but when a child with hemophilia catches a nasty bug, parents need to take special precautions.

Husband and wife
By Diane O’Connell | 01.14.2010

Many parents of children with hemophilia have overcome hurdles to forge happy, healthy relationships.

Grandpa and boy, both with hemophilia
By Sarah Aldridge | 01.05.2010

Growing kids. Aging parents. Adult children in the middle.

Gonzales family
By Martha J. Frase | 01.05.2010

Although she phased out such dramatic physical precautions as her son grew and his condition was better controlled, suppressing her protective impulses proved challenging for Eileen.

Dad and adopted daughter
By Martha J. Frase | 01.04.2010

Adoption experiences in the bleeding disorders community are as rich and varied as the families themselves.

College student with hemophilia
By Phyllis McIntosh | 12.16.2009

Among the more than 4,000 colleges and universities in the United States, there is a good fit for almost any student with a bleeding disorder.