NHF encourages everyone who has a bleeding disorder to wear some form of medical ID. Some consumers are demanding more flair than the plain metal bracelet.
Many families today benefit so much from hemophilia prophylaxis that joint bleeds may be infrequent. Will you know how to recognize and treat a joint bleed when it happens in your child?
Shai had been anxious about needles before. But as his parents prepared to transition him away from his port, he began to hide his arms at infusion time.
Whether you are working and need a day care provider or your child is getting ready for preschool, there are numerous resources and steps you should take to choose the right person to care for your child.
When Sherry Johnsson's* son, Mark*, was three years old, he had a joint bleed and was brought to his local hemophilia treatment center (HTC) for a peripheral infusion.
She and her toddler were out for a stroll when she had an unsettling experience. Her son has a rare thrombocytopenia-type platelet disorder and had a black eye and bruises.
Avoiding trips to the ER with your toddler is an unspoken goal for every parent, but especially for parents of children with hemophilia and bleeding disorders.
Sports injuries don’t often result in death, but when they do, the leading cause is traumatic brain injury, which disrupts the normal functions of the brain.
