A HemAware letter to the editor points out the near-impossibility of two brothers with hemophilia having different severity levels.
NHF encourages everyone who has a bleeding disorder to wear some form of medical ID. Some consumers are demanding more flair than the plain metal bracelet.
Many families today benefit so much from hemophilia prophylaxis that joint bleeds may be infrequent. Will you know how to recognize and treat a joint bleed when it happens in your child?
Learn how to handle your baby’s bleeding disorder.
NovoSeven has been demonstrated safe and effective when treating cranial hemorrhages in patients with inhibitors.
About 2 million kids and teenagers in the US who are 12 to 17 years old had at least one major depressive episode in the previous year.
The Hemolog iPhone app is now available to log your factor infusions. Logs and phone apps can help with adherence.
Shai had been anxious about needles before. But as his parents prepared to transition him away from his port, he began to hide his arms at infusion time.
Fewer than 1,000 of the people with hemophilia have an inhibitor—The Inhibitor Patient Education Summits can provide answers to these families.
Hemophilia summer camps -- No cell phones, iPods, computers or TV for a week. And the kids love it.
Doctors surgically implant these devices under the skin to allow frequent injections.
Whether you are working and need a day care provider or your child is getting ready for preschool, there are numerous resources and steps you should take to choose the right person to care for your child.
When Sherry Johnsson's* son, Mark*, was three years old, he had a joint bleed and was brought to his local hemophilia treatment center (HTC) for a peripheral infusion.
She and her toddler were out for a stroll when she had an unsettling experience. Her son has a rare thrombocytopenia-type platelet disorder and had a black eye and bruises.
Avoiding trips to the ER with your toddler is an unspoken goal for every parent, but especially for parents of children with hemophilia and bleeding disorders.
Sports injuries don’t often result in death, but when they do, the leading cause is traumatic brain injury, which disrupts the normal functions of the brain.