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Hemophilia A&B

Boy grinning with missing tooth
By Elizabeth Thompson Beckley and Melanie Padgett Powers | 09.06.2011

Trouble finding a dentist? Here are some ways to find the right dental home.

By Laura Putre | 07.25.2011

Learn how you can prepare your children to manage their bleeding disorder, beginning even when they're a toddler.

By Sarah Aldridge | 07.25.2011

Biogen Idec is conducting trials on longer-lasting hemophilia factor products.

Boy dressed up for battle
By Sarah Aldridge | 07.25.2011

Although having a bleeding or clotting disorder can make a child a target, when it comes to bullying and mean girls, experts say anyone can be fair game.

Woman working in lab
By Rebecca Clay | 07.05.2011

The bleeding disorders community is concerned about a potential FDA approval shortcut for biosimilars of factor products.

Emergency room sign
By Melanie Padgett Powers | 06.27.2011

An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child’s bleeding disorder when they must visit the emergency room.

06.07.2011

A HemAware letter to the editor points out the near-impossibility of two brothers with hemophilia having different severity levels.

Medical ID for hemophilia
By Kadesha Thomas | 05.23.2011

NHF encourages everyone who has a bleeding disorder to wear some form of medical ID. Some consumers are demanding more flair than the plain metal bracelet.

Older man with hemophilia
By Sarah Aldridge | 04.25.2011

Growing older with hemophilia can feel less like the golden age and more like the rust years. As you age, it is important to advocate for yourself and access the resources at your HTC.

Toddler with a joint bleed
By Laura Putre | 04.25.2011

Many families today benefit so much from hemophilia prophylaxis that joint bleeds may be infrequent. Will you know how to recognize and treat a joint bleed when it happens in your child?

Globe
By Neil Frick, MS | 04.20.2011

The World Federation of Hemophilia held its first Global Research Forum in March to discuss how it can assist in bleeding disorders research around the world.

Ryan and Kay Krivas
By Melanie Padgett Powers | 03.07.2011

Some parents in the bleeding disorders community must deal with additional medical and emotional challenges, because their children have a second diagnosis: a developmental disability or a neurobehavioral disorder such as autism or ADHD.

Toddler with hemophilia learns to walk
By Gina Shaw | 02.07.2011

NovoSeven has been demonstrated safe and effective when treating cranial hemorrhages in patients with inhibitors.

Two teenagers watch the TV show Royal Pains.
By Sarah Aldridge | 02.07.2011

“We want to be part of mainstream media,” says Val Bias, NHF CEO. “Anything that brings more visibility to the foundation and what we’re trying to do helps our agenda.”

Teenage boy with hemophilia and depression
By Eric Metcalf | 02.07.2011

About 2 million kids and teenagers in the US who are 12 to 17 years old had at least one major depressive episode in the previous year.

Boy with hemophilia on playground
By Bruce Goldfarb | 02.06.2011

For more than 40 years, doctors who care for people with hemophilia have known that therapy with replacement clotting factor can reduce bleeding into joints.

Head bleed
By Sarah Aldridge | 02.05.2011

Head bleeds can occur in children and adults with bleeding disorders. The obvious ones are a result of trauma, such as a fall or injury to the head, but some occur spontaneously from no apparent cause.

Hemophilia and sports
By Sarah Aldridge | 02.03.2011

“Surprisingly, we found that kids with severe hemophilia could take a lot more in the way of impact sports than is often attributed to them.”

Doctor with mom and little girl at a hemophilia treatment center
By Rebecca A. Clay | 02.02.2011

HTCs are designed to attend to all of a patient’s needs, from the medical and psychological to practical matters such as schooling, insurance and jobs. Learn how they can help your family.

A hemophilia nosebleed
By Nick Kolakowski | 02.01.2011

People with hemophilia get nosebleeds, which can usually be treated at home.