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Hemophilia A&B

NasalCEASE box
By Sarah Aldridge | 10.24.2011

Nosebleed treatment NasalCEASE has been approved for minor wounds for those with bleeding disorders such as mild hemophilia or von Willebrand disease, type I.

Single dad with his son and father playing chess
By Kadesha Thomas | 10.24.2011

Single parents find support while raising children with bleeding disorders.

Cross in front of church stained glass window
By Sarah Aldridge | 09.28.2011

Spirituality helps people dealing with bleeding disorders find comfort, hope and peace in the midst of a chronic health condition.

Needle
By Melanie Padgett Powers | 09.15.2011

Children and adults with bleeding disorders can and should receive the recommended immunizations for their age group.

Home Sweet Dental Home sign
By Elizabeth Thompson Beckley and Melanie Padgett Powers | 09.06.2011

What you need to know about preventive dental care and treatment for people with bleeding disorders.

Boy grinning with missing tooth
By Elizabeth Thompson Beckley and Melanie Padgett Powers | 09.06.2011

Trouble finding a dentist? Here are some ways to find the right dental home.

By Laura Putre | 07.25.2011

Learn how you can prepare your children to manage their bleeding disorder, beginning even when they're a toddler.

By Sarah Aldridge | 07.25.2011

Biogen Idec is conducting trials on longer-lasting hemophilia factor products.

Boy dressed up for battle
By Sarah Aldridge | 07.25.2011

Although having a bleeding or clotting disorder can make a child a target, when it comes to bullying and mean girls, experts say anyone can be fair game.

Woman working in lab
By Rebecca Clay | 07.05.2011

The bleeding disorders community is concerned about a potential FDA approval shortcut for biosimilars of factor products.

Emergency room sign
By Melanie Padgett Powers | 06.27.2011

An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child’s bleeding disorder when they must visit the emergency room.

06.07.2011

A HemAware letter to the editor points out the near-impossibility of two brothers with hemophilia having different severity levels.

Medical ID for hemophilia
By Kadesha Thomas | 05.23.2011

NHF encourages everyone who has a bleeding disorder to wear some form of medical ID. Some consumers are demanding more flair than the plain metal bracelet.

Older man with hemophilia
By Sarah Aldridge | 04.25.2011

Growing older with hemophilia can feel less like the golden age and more like the rust years. As you age, it is important to advocate for yourself and access the resources at your HTC.

Toddler with a joint bleed
By Laura Putre | 04.25.2011

Many families today benefit so much from hemophilia prophylaxis that joint bleeds may be infrequent. Will you know how to recognize and treat a joint bleed when it happens in your child?

Globe
By Neil Frick, MS | 04.20.2011

The World Federation of Hemophilia held its first Global Research Forum in March to discuss how it can assist in bleeding disorders research around the world.

Ryan and Kay Krivas
By Melanie Padgett Powers | 03.07.2011

Some parents in the bleeding disorders community must deal with additional medical and emotional challenges, because their children have a second diagnosis: a developmental disability or a neurobehavioral disorder such as autism or ADHD.

Toddler with hemophilia learns to walk
By Gina Shaw | 02.07.2011

NovoSeven has been demonstrated safe and effective when treating cranial hemorrhages in patients with inhibitors.

Two teenagers watch the TV show Royal Pains.
By Sarah Aldridge | 02.07.2011

“We want to be part of mainstream media,” says Val Bias, NHF CEO. “Anything that brings more visibility to the foundation and what we’re trying to do helps our agenda.”

Teenage boy with hemophilia and depression
By Eric Metcalf | 02.07.2011

About 2 million kids and teenagers in the US who are 12 to 17 years old had at least one major depressive episode in the previous year.