Participants learn, share experiences, make new friends and reconnect with old ones at Inhibitor Education Summits in Miami and San Francisco this summer.
Individual blogs, discussion forums, Twitter, Facebook and YouTube are increasingly becoming the primary link connecting members of the bleeding disorders community.
An Inhibitor Family Camp was held October 14–16, 2011, at Camp Victory Junction in North Carolina, for families living with hemophilia with inhibitors.
Grants are typically awarded to 13–20 families and individuals who have never attended an NHF Annual Meeting. The next Annual Meeting is in Chicago, November 10-12, 2011.
There were several reasons we decided to make this our first NHF Annual Meeting. First, two of the four of us have von Willebrand disease (VWD)—wife/mother Julie and son Chad.
By Alexandra Johnson, with additional material by Michelle Cecil | 02.16.2011
National Youth Leadership Institute sent groups out into New Orleans at the NHF Annual Meeting to find similarities between news events and bleeding disorders.
Both my stepdaughters were born with severe factor V deficiency, an orphan disease with no treatment except fresh frozen plasma after a bleed is recognized.
