“Steps for Living” provide in-depth educational and instructional materials for people with bleeding disorders, and their families, as they move from birth to adulthood.
Nearly 2,400 people with bleeding disorders, their family members, healthcare providers and industry representatives gathered for the 2010 NHF Annual Meeting. Learn more and view a photo slideshow.
My goal is to create some sort of multimedia presentation based on the BLOOD mnemonic and have healthcare providers use it as part of their differential diagnosis.
Scientific literature can be intimidating, even to people with hemophilia and other bleeding disorders. Not so for three consumers selected to attend the National Hemophilia Foundation’s new therapies workshop.
In his speech at the 2009 Annual Meeting Opening Session, NHF CEO Val D. Bias reiterated NHF’s commitment to its chapters and the community through various programs and campaigns.
When I was growing up, Camp Ailihpomeh was more than just a week away from my parents to hang out in the boonies of Central Texas. It was a time every year that I looked forward to as much as Christmas or my birthday, if not more.
The life stories of 21 men with hemophilia are chronicled in "The Gift of Experience: Conversations About Hemophilia," which was developed from an oral history project at the Boston Hemophilia Center in 2004–2005.
