Hemophilia and von Willebrand disease (VWD) are not well-known outside the bleeding disorders community. But thanks to the spotlight on these disorders from several media, film and television luminaries, that is changing.
“We want to be part of mainstream media,” says Val Bias, NHF CEO. “Anything that brings more visibility to the foundation and what we’re trying to do helps our agenda.”
HTCs are designed to attend to all of a patient’s needs, from the medical and psychological to practical matters such as schooling, insurance and jobs. Learn how they can help your family.
Healthy People 2020, the nation’s new 10-year health roadmap, includes a “Blood Disorders and Blood Safety” section for the first time. Goals include increasing von Willebrand disease diagnosis and reducing hemophilia joint problems.
Nearly 2,400 people with bleeding disorders, their family members, healthcare providers and industry representatives gathered for the 2010 NHF Annual Meeting. Learn more and view a photo slideshow.
Some important provisions of the healthcare reform are now in effect, including elimination of pre-existing condition exclusions for children, and the ability for dependents to stay on their parents' plan up to age 26.
HemAware catches up with a college student who recently drafted a bill that would authorize funding for bleeding disorders screening and physician awareness programs.
The US House passed landmark healthcare reform late Sunday, March 21. How will the various provisions help people with hemophilia and other bleeding disorders?
A lot has changed in the more than 30 years since hemophilia treatment centers (HTCs) were started as a way to better diagnose and treat people with bleeding disorders.
During the National Hemophilia Foundation's Washington Days, members of the bleeding disorders community talk healthcare reform and more with their congressional representatives and senators.
