Research & Treatment

Stay updated on the latest treatment, including surgeries and transplants, for hemophilia, von Willebrand disease, rare bleeding disorders, HIV and hepatitis C.

Progress Made for My Life, Our Future Genotyping Initiative

Pilot sites approved and first patients enrolled.

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NHF Launches My Life, Our Future Genotyping Initiative

Benefits of genotyping are both individual and communal.

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Genotyping for Progress

My Life, Our Future aims to unlock hemophilia.

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The Zombies Were Having Fun

Since it is the time of year when people start wearing sweaters and thinking about putting the winter quilt on the bed, and here in Arizona it might drop down to the brisk upper 60s at night, I...
Put Your Right Foot In. Take Your Right Foot Out.

One of the few ways I still amaze my wife after thirty-some years (when I'm not irritating her by doing the very same thing) is by remembering little details of a place and time. What really makes...
Detour! There’s a Muddy Road Ahead, Detour…

We interrupt our riveting story of how I learned to put on my pants after my stroke to bring you some thoughts about a current topic of interest. (And to give me some time to deal with some major...

1-2%

of people in the US have von Willebrand disease, the most common bleeding disorder.

Treatment Breakthroughs

More new drugs are in the pipeline now than in past decades

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Sex Talk

Because sexual problems are not often discussed in public, women with bleeding disorders can feel isolated and unsure where to turn.

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Clean Cut

Nosebleed treatment NasalCEASE has been approved for minor wounds for those with bleeding disorders such as mild hemophilia or von Willebrand disease, type I.

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140

hemophilia treatment centers exist in the US to help you manage your bleeding disorder.

Treatment Breakthroughs

More new drugs are in the pipeline now than in past decades

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Hemophilia Pseudotumors 101

Pseudotumors are rare in countries with access to hemophilia treatment, but it’s important for those at risk to know about this potentially life-threatening complication.

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Factor XIII Deficiency One of Rarest Bleeding Disorders

The Food and Drug Administration approved Corifact, the first factor treatment for factor XIII deficiency, on February 17, 2011.

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1-2%

of people in the US have von Willebrand disease, the most common bleeding disorder.

Organ Transplants in HIV-Positive People

Legislation calls for lifting 25-year ban.

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Researchers Discover HIV Variant Linked to Dementia

An October 2011 study revealed a novel characteristic of HIV.

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HIV Under Control

Elite HIV controllers have nearly undetectable levels of the virus, and researchers are trying to figure out why.

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1-2%

of people in the US have von Willebrand disease, the most common bleeding disorder.

Hepatitis C Update

CDC urges baby boomer testing; new drugs in development.

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New Hepatitis C Drugs Mark Major Advancement

The release of two new oral medications marks another significant advance in the fight against hepatitis C.

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Sea Change

Boceprevir and telaprevir were approved for treatment of hepatitis C in May 2011.

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